Supporting discoveries since 1987

June 23, 2017 at 10AM EDT
Sponsored by the NIH Data Science Special Interest Group
National Library of Medicine

The NIH Data Science Special Interest Group is proud to host the webinar Global Perspective on Biobanking and Access to Samples on Friday June 23, 2017 at 10 am EDT. Biobanking leaders from around the world will discuss the challenges and obstacles in sharing and accessing samples and their associated data. The discussion will also address samples that are scarce and how to overcome challenges associated with obtaining these samples. The online audience will be able to send questions directly to the panelists through the GoToWebinar interface. We hope the webinar will facilitate further discussion on these issues and generate new ideas for possible solution and collaboration.

Panelists include:

Jonathan Pevsner, Professor, at the Dept. of Neurology, Kennedy Krieger Institute, Dept. of Psychiatry and Behavioral Sciences, Johns Hopkins Medicine. Presentation: Biobanking User’s Perspective and an Overview

David van Enckevort, Project Manager, BBMRI & RD-Connect, Department of Genetics, University Medical Center Groningen (UMCG).). Presentation: FAIR (Findable, Accessible, Interoperable and Reusable) Data and Sample Access

Manuel Posada de la Paz, Director, Research Institute for Rare Diseases (Institution de Investigación en Enfermedades Raras) and member of the EuroBioBank. Presentation: Rare Diseases Biological Samples: Small Collections and Research.

Kerry Wiles, Program Director, VUMC Tissue Repository, Cooperative Human Tissue Network (CHTN) Western Division Coordinator. Presentation:  An Academic Prospective Procurement Repository: From Donor to Bench

Jim Vaught, Editor-in-Chief, Biopreservation Journal, past President of the International Society for Biological and Environmental Repositories (ISBER), and member of the board of directors for ISBER and NDRI (National Disease Research Interchange). Presentation: NIH and ISBER Perspectives on Specimen Locators

Daniel Catchpoole, Director, Kids Research Institute, The Children's Hospital at Westmead (Australia). Presentation: The Australian Experience; Issues and Solution 

Click on the link below to register for Friday’s webinar. Once you register, you will receive a confirmation email containing the GoToWebinar information for this conference. The webinar is scheduled from 10 am – 12 pm EDT, but please allow additional time to ensure a smooth start and finish. https://register.gotowebinar.com/register/4164127994245004547

NIH staff and local attendees can join the webinar in person in the Wilson Hall of Building 1.  

Author: 
The Data Science SIG Steering Committee